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Community Rallies Around Vivian Family

Several fundraisers have been planned to help the family out with medical and other expenses.

The local community has taken up supporting Becky and Steve Vivian and their four children over the last several weeks since people started hearing their story. 

Now a huge holiday-themed event is taking place on Sunday December 2 from 11am-4pm at the Greater Philadelphia Expo Center. 

Called Wonderland of Wishes, the event will feature fun activities for all ages including a train ride, cupcake decorating, food, and games. 

The event is going to feel like walking into a live Candy Land game, with different areas such as the Ice Palace, Licorice Lake, and Lollipop Woods. 

Admission is free with activities and goods priced at different rates. All proceeds benefit the Vivian family. 

The Vivians have two children, 7-year-old Eli and 4-year-old Ella, who have a serious disease called metachromatic leukodystrophy (MLD). They are hoping that both children will be accepted into a clinical trial in Milan, Italy, which is already showing promising results in children with this rare disease. 

Becky Vivian started a Facebook page, "Eli & Ella's Prayer Warriors", that has over 4000 likes. 

Back on November 17, almost 600 people attended a fundraiser dinner and silent auction at the Franklin Commons building in Phoenixville. 

Several other events are planned, inlcuding a Flapjack Fundraiser at Applebee's and a Texas Hold 'Em tournament in January; please visit the Vivians' Facebook page to see the scheduled events.

Sue Bani November 27, 2012 at 03:54 AM
Boy Scout Troop 230 of Limerick will be there to help set-up on Saturday and also to help everyone on Sunday - we continue to pray for a cure but will help make smiles happen and help the children smile!

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